It Takes a TEAM

I started with a new company a few months ago, and realized immediately I was not going to be successful on my own – to make the most of my skill sets I was going to have to rely on everyone else. Now for some of you reading this it may seem like common sense, but for the last year or so I had pretty much been left to my own devices – if I needed help I could ask, but it was easy for me to believe I was a one-man show. 

I think the same can be said as parents of children with disabilities (I’ve never been a parent of a child without, so I can’t say). We get really used to just putting our heads down and slogging forward, figuring stuff out as necessary; and often, like my wife and I did, splitting the responsibilities. This got us by, I don’t feel like my son suffered or wanted for anything; but in hindsight we certainly could’ve done more (isn’t that always the case?).

What I’ve learned over the last (5) years is this – yes, I can find a way to do just about anything on my own; but why should I?! Instead I look for an expert in whatever it is I need to do. For example, I had a friend help me teach him to cook and he’s now making himself dinner every night.

I also hired an advocate when he was transitioning from middle to High School. Not because I felt the school was trying to screw me over, quite the opposite – I’m a very passionate guy and I didn’t want to send the wrong message to the other members of the IEP meetings. I also had a hard time coming to terms with their recommendation that he should be in the certificate program (in school until 21) rather than earn a diploma. The advocate helped me work through this (although if I’m completely transparent I’m still finding it hard to swallow – although I believe it is the right thing to do).

These are just a few examples, and you don’t necessarily have to pay a professional. After all, there are a lot of people in this world and it’s likely someone else has lived through something that can be correlated to challenges you’re facing now. I’m not suggesting you put your business out there; but I do believe you should build yourself a core network of individuals whom you can trust, who can understand where you are and where you want to be. And be okay with this group changing over time, I think life has stages and we each pass through them at our own time and pace.

I learned this when I was stationed on my first boat (submarine, hence the pic); but somehow over the years I had forgotten. I’m betting many of you may be saying something similar – maybe from your time playing sports in school, or as a Boy/Girl Scout. It often seems easier to do it ourselves rather than asking for help; but the risk we run in doing so is not knowing what we could be missing. So next time you come across something that’s not in your “lane” take a moment and ask yourself – who do I know that I can reach out to. If no-one readily comes to mind, ask yourself, who do I know who seems to know “everyone”. I have yet to meet someone that doesn’t know at least one person like this, so I’m betting you do. If not, reach out to me – I’ll be happy to help you connect with the right resource.

You’re NOT alone!

Manna Food Center

Manna Food Center is a food bank headquartered in Gaithersburg, Maryland focused on eliminating hunger in Montgomery County, Maryland. It’s a little more localized than the non-profits I usually spotlight; but with something like eliminating hunger I believe it’s more effective to focus locally and spread.

Who They Are 

Manna Food Center is a food bank – they provide food to approximately 40k people each year; in addition to supplying soup kitchens, food pantries and shelters throughout the County. As a food pantry they’ve established distribution sites to enable those who need the help to readily access it. Before meeting with them I had no idea what the difference was between a food bank and food pantry – a food bank stores the food and products; the pantry is what actually distributes the food. A food bank could (and Manna does) supply multiple food pantries.

I was shocked to learn 1/3 of students attending public schools receive free or discounted lunches – because of how wealthy I’ve perceived Montgomery County to be. To be clear – Montgomery County is wealthy, but they also have a large population of seniors and those with disabilities who may struggle given the high cost of living and additional healthcare expenses.

What They Do 

Manna Food Center serves over 3,700 families each month! Rather than list out their strategic plan in detail, I invite (and encourage) you to read about it here. In brief, they have (3) priorities (from their website):

(1) Participant-centered & data driven program delivery

(2) Community Leadership & Advocacy

(3) A values-based business model that supports the people who make our work possible.

What Else Should I Know

They’ve repurposed an old school bus into a mobile kitchen and pop-up pantry; bringing nutritious foods AND providing the opportunity for those living in the communities reached to learn how to prepare them.

Manna doesn’t just provide a handout. They do their best to help those they serve understand the importance of making healthy lifestyle choices, provide them with the opportunity to do so and in many cases bridge the gap when families hit a rough spot; something I think all of us can relate to – even though maybe not to the extent we didn’t know where our next meal(s) were coming from.


I am not an employee of Manna Food Center and any errors noted are my own. If I have misrepresented, or misstated anything please provide constructive feedback so I may make the appropriate change(s). All opinions and views are my own.

Mind the Gap

How many people do you know who want to retire early, or leave their job for one reason or another? At first glance it seems like it would be awesome – plenty of free time, nobody telling you what to do, it’s like moving out of your parent’s house all over again! And I’m all for this, although I’ll be the first to admit early retirement just isn’t for me – at least not in the traditional sense. But I’m not discussing the pros/cons of early retirement – in the next few paragraphs I’d like to identify some things I think many of us overlook in our race to the finish.

First, and this is a biggie, health insurance. You are eligible for Medicare three months before your 65th birthday to 3 months after. There are some additional opportunities for those with disabilities, but let’s stick to this. If you retire before age 65, and you had been relying on your employer’s healthcare plan take a look to see what you’ll do when you leave. Does your spouse have a plan? Will it affect any of your children who may still be on your plan (under age 26 or disabled)?

I encourage everyone to make sure they (1) have identified what they’ll do and (2) are sure they can afford the option(s) chosen. It would be horrible to work off the premise you’ll use COBRA and then find out you can’t afford the premiums, or that it doesn’t cover you until you’re Medicare eligible. If leaving the work force before 65 is on your radar, healthcare should be one of the first things you consider.

Next – what are you going to do with all that time? For most of us work accounts for at least (8) hours, 5 days each week. Not counting travel time or other jobs (side-hustles) you may have. This time is occupied, even if only with “busy work”, not requiring much on your part to entertain yourself. What would 52 weeks of vacation be like for you? Could you afford it?

I urge you to consider this seriously, because I’ve heard several “rules” of thumb when it comes to retirement and I’m not fond of any of them. For example – the rule you only need 80% of what you’re currently making. This is a great rule IF, and only IF, you are in the minority of the population who is saving at least 20% of their income. If you’re not, why would you spend less when you have more free time? Sure, you may fill some of this time volunteering and with hobbies, but rather than just jumping right in try taking mini-retirements first – vacations without trips planned, because in most cases it’s not realistic in most cases you’ll be able to take trips each week – while spending what you’re spending now. 

Last, and not in any way least, understand your why. Are you doing this because it’s the “thing” to do, because you have a bigger vision you need time for, or because you want to relax and enjoy your later years? There’s no right or wrong reason, but the more connected to your why you are the more likely you’ll do whatever it takes to make it happen.

And that’s the point I want to stress – no matter what you want to do, or why; if it’s important to you treat it that way. If you want 40+ years to yourself in retirement, make sure you have enough money to fund it – even if it means making sacrifices now. Only, if it’s what you really want they won’t be sacrifices; they’ll be steps on your journey to your ideal state.

If you’re retiring before Medicare eligibility, consider investing into a side account, at least equal to your current insurance premiums, to be drawn from later. If you want to live on a beach or in the middle of the woods, would it help to pay off your current mortgage to maximize the money available to purchase these cottages? Just food for thought, and don’t feel bad if you don’t have all the answers. Talk to your advisor(s), friends and family – use them as sounding boards (but not final decision makers). Look for those with similar goals and see what they did to accomplish their goal; or have done to put themselves on track. And learn from their mistakes – not reinventing the wheel goes for the bad as well as the good.


Side Hustle, What?!

When I was younger if you had a second job, it was just that – a job. It wasn’t anything to celebrate, because often you were working to help pay your bills. I’m not sure what’s changed, and I fully admit I’m not 100% in touch with current lingo – but as I understand what I’ve been hearing, a “side hustle” is something people SHOULD have.

I can think of many instances when this is a good idea; for example if you have a hobby  you’re trying to become better at, in the hopes you can make it into a career (i.e. wood carver). After all, assuming the following:

1) Malcolm Gladwell’s theory it takes 10,000 hours to master a skill is accurate

2) We work and sleep on average (8) hours per day

3) We can spend (4) hours of each day (Monday – Sunday) working on our skill

It would still take us almost (7) years to become a “master” (6.85 years). That’s a long time to work on something for no reward (other than the satisfaction of becoming better). So getting paid to practice could be a great way to both stay motivated to learning and put a little extra cash in your pocket.

However, I question if this is why most people have a side hustle – I think for many it’s a way to increase their income. Nothing wrong with this, if you’re honest with yourself and you know what you want the money for. If it’s being used to cover monthly expenses, then I encourage you to revisit your spending habits. On the other hand, if you’re using it to save for a specific goal; just to have some extra cash; or as I postulated above, to get better at a skill more power to you!

Here’s where I become an old fuddy duddy (as proven by using the words “fuddy duddy”). When you consider a side hustle, and are determining how much money you’re going to make – please consider the associated expenses. This means if you’re driving for one of the ride share apps consider the increased frequency of required maintenance (oil changes, detailing, brakes, etc); the same goes if you’re renting a room or your house – typically there are additional expenses, including insurance, that often go overlooked.

If you’re “earning” $500 per month, but spending an extra $300/mth doing so evaluate if it’s really worth it. Many of the side hustles I’ve seen people do have the potential to be very lucrative; but like anything if you don’t know what it’s costing you you cannot be sure you’re really making a profit.

If you’re not sure how much you’re really making, track your cash flow. This is nothing more than the money coming in vs the money going out. You can set up a tracker in basic tracker in excel or talk to a financial advisor.  I like to see my clients saving at least 20% of money coming in for goals (not just retirement, things like trips to Disney & new cars as well). If you can’t, even with the side hustle, I would encourage you to evaluate where your money is going – and not just take on something else. And remember, although I’ve only talked about money; there’s another cost to be considered – time. Use it wisely, I don’t know of anyone who died wishing they’d spent more time working.

The Catch-22 of Taxes and Social Security

I don’t think anybody likes taxes – in fact I think it’s safe to say we would all prefer not to pay them. To that end, we do whatever we can to reduce what Uncle Sam sees as our taxable income; and why not – after all we work hard for what we earn! Unfortunately, not very many companies offer pensions, so it’s up to the individual to save for his or her retirement. Add a child with a disability, and you’re saving for at least two generations; and this is where the catch-22 comes into play.

If you reduce your taxable income your reducing the amount you pay into social security. Social Security considers the average of 35 years of wage history, with any years not reported counted as $0 income. This average is used to determine what they will pay you, the worker, in the event you become disabled or retire. The lower the amount you pay in, the lower the amount you receive. This will be even further reduced by taking social security before your full retirement age (FRA).

So what,  you may be saying. Well, remember what I said in the first paragraph about most of us not receiving a pension. Without Social Security, 2 in 5 elderly Americans would have incomes below the poverty line – that’s 40% of people aged 65 and up (source Center of Budget and Policy Priorities). If you decrease the amount you “earn”, without saving for your retirement, you’re also reducing your retirement income; not to mention what you’ll leave behind for your spouse or disabled child.

Disabled adult children become eligible to receive SSDI, provided they were disabled before the age of 22, paid on their parent’s Social Security earnings record. There are additional requirements (found here); but the point I want to make is YOU control what your child will receive. In 2017 the maximum earnings subject to Social Security payroll tax is $127,200. This means if you’re married or head of household you’d be in the 25% federal tax bracket.

In my opinion it’s worth it (to me) for my son to receive the highest amount of SSDI possible. I’m not a fan of paying taxes, but I do want to ensure my son’s quality of life doesn’t drop when I’m gone. I’m not counting just on social security, I have life insurance and I’m fortunate to transfer some of my military pension to him as well. Each of us needs to make our own decisions, there is no right or wrong answer. However ensure you are making an informed decision. Weigh the pros/cons of taxes, and consider what you’re doing to help yourself, and if applicable, your disabled child.

This, like many financial decisions, doesn’t have to be made in a vacuum. Talk to your advisor and/or accountant; get their input. The solution is not necessarily always reducing your taxable income, especially if you’re a self-employed business owner and you’re reinvesting everything you make back into the business (not saving for retirement).

When Is Your “Independence Day”?

July 4th is Independence Day for those of us living in the United States, and it brings to mind thoughts of what independence means – is it the same for everyone; or, as I suspect, do each of us hold our own ideal close to our heart – perhaps never sharing?

Certainly, the freedoms guaranteed by our Constitution mean a LOT to me, I’m proud of the years I served in the Navy; but I don’t consider myself truly “independent”; at least, not yet. In my mind I won’t be “independent” until I’m confident my son will be able to have a life worth living on his own – this should not be confused with “surviving”. Until this happens, he’ll be dependent upon me; which to me means I’m not “free”.

This is not a pity party or a complaint, but it is my reality – and I think for many of you reading this there is a similar reality. I think we plan our whole lives for when we don’t have to answer to anyone, when we can just do what we want when we want (well, I KNOW this was my plan). However, reality is seldom so black and white.

My “independence day” is on the horizon, and I have a strong belief I will live to see it – my son’s own independence continues to grow in leaps and bounds; and thanks to technology things we once thought would be insurmountable can either now be done, or will be achievable in my lifetime, without much more effort than it takes to open an app.

For those of you reading this – what does freedom mean to you? Are you doing everything you can to achieve it; or are you waiting for someone else to give it to you? If you’re waiting, don’t! To the best of my knowledge independence has never been achieved without a LOT of effort from those desiring it. I’m not suggesting you storm the ramparts or take up arms against the establishment; but if you don’t at least contribute the achievement of your goals will you truly value them? Heck, will you even recognize when they come true?

So set your sights on what freedom means to you, and map out a strategy to get there and get moving. If you’re fortunate enough to have achieved your freedom, extend a hand and help others – encouraging words go a LONG way, so don’t be shy or afraid to offer praise. Celebrate the little victories, and don’t let losses bog you down – learn the lessons they are meant to teach and forge ahead. Finally, remember it’s hard to know you’ve arrived at your destination if you’ve never identified where you are going.

ABLE Accounts & You

One of the most frequent questions I still get is “should I get an ABLE account or a Special Needs Trust”? And the answer is, generally, both. There is a lot of potential to use them in a complimentary fashion, although there may be some instances where it’s more effective to just get the Special Needs Trust.

As a brief recap, or intro for those that are not familiar with ABLE accounts, here is a quick overview. The ABLE National Resource Center has done an amazing job compiling information about ABLE accounts, including a map allowing you to select each state; and run a comparison of various accounts. If you haven’t yet, I encourage you to check it out, here’s the link: I will deliberately not be diving into what an ABLE account is, how you set one up, or its requirements in here.

ABLE accounts allow individuals with disabilities to accumulate up to a maximum of $100,000 while receiving SSI. Should the individual’s account exceed $100k, their SSI benefits will be suspended – but they will maintain their Medicaid. As of June 2017 you can only contribute $14k per year to an ABLE account.

Some ways I would incorporate them into a family’s plan include:

1) Saving an individual’s wages.

2) When charging a family member rent to maximize SSI, gift up to $14k back.

3) Use as a mid to long term investment vehicle for larger purchases insurance doesn’t cover; for example assistive or adaptive technology.

4) Housing or food costs (using a trust could jeopardize SSI).

These are examples, and don’t come anywhere near touching on everything it could be for. ABLE accounts are designed to help individuals with disabilities increase their level of independence and do more than just “survive”. Individuals do not have to justify their spending to a trustee, although they should be tracking what they spend the money on – and from what I’ve seen the accounts themselves provide tools for this on their websites.

In my opinion, ABLE accounts are fantastic tools; but do not replace the need for a Special Needs Trust. I encourage families to think outside the box – instead of focusing on what our children/siblings can’t do let’s start imagining what they could do, with the right supports. Disability rights momentum is gaining, there are opportunities for our children now which didn’t exist just 10 years ago; and it’s my hope this continues exponentially.

You can do your part by having a willingness to accept there may be failures, and the change may not be pretty. Sure, there is a possibility the money in an ABLE account may be spent frivolously; but in my opinion that’s just part of being independent (not that I’d be happy about it). Can any of us honestly say we’ve never wasted any of our money?

All I ask is this. Instead of immediately saying to yourself “my son/daughter could never…”; replace it with “I will let my son/daughter try ___________, and though they may not be successful right away (few of us are) I will continue to be supportive”. The reality is there will still be things outside of their capability, at least for now. But technology is evolving, providing capabilities I never would’ve considered. As one example – the app “Be My Eyes“.

Circling back to the ABLE account, you don’t need a financial advisor/planner to set one up; I opened my son’s in Virginia (Maryland’s isn’t available yet) and I found it very user friendly. If you’re not sure how an ABLE account will tie into your overall plan, or if it’s right for you, then consult with an advisor/planner – but make sure they understand special needs planning; because we are not the same.